It's pretty amazing, everything she's been through these past 68 days. Once we are all caught up with our Beads of Courage I will post a picture of her necklace.
Here's the breakdown of bead colors, corresponding procedures and how many Meg has accrued.
Beige=Bone Marrow Aspirate/Biopsy 1
White= Day of Chemo 5
Orange=Port Insertion and Removal 1
Blue=Clinic Visit 0
Silly Face= Hair Loss 1
Tortoise=Lumbar Puncture 1
Silver/Black= Pokes 15
Glow in the Dark=Each Day of Radiation 24
Light Green= Tests/Scans/etc 8
Red= Transfusion 1
Aqua= Tube Insertion 6
Yellow= Each Day of Hospital Stay 68
Dark Green= Stem Cell Harvest/Dialysis/TPN 0
Silver= Surgery & Dressing Changes 4
Square Heart= Transfer to PICU 1
Yesterday we took Meg home for several hours. The kids fought with each other, played with each other... It felt a little normal. Bringing Meaghan home will be difficult for everyone. The hospital is safe, controlled. Meg isn't just a cancer patient, she's a rehab patient with significant physical limitations. Our family will undergo another period of adjustment, but right now I'll just focus on enjoying all being under the same roof! Even with all the sibling squabbling.
Before I forget, I'd also like to report some good news: Meg's weight is up from 19.1 kg to 20.9 kg in one week! I wish she were eating by mouth, but she's getting balanced nutrition and hydration through her tube. For now, I can table that fight.