Please enjoy these few pictures from Christmas morning.
As you can see, we had a blast opening all the gifts! We are not accustomed to such fanfare and we were all wiped out afterwards, but the kids were up to the challenge.
In the short time from Christmas morning to today, Meaghan's hair has completely fallen out. She doesn't want to wear a hat and ignores us when we approach her about it. We follow her lead and it's a non-issue.
It's actually a bit of a relief now that it's all out. For a few days it was just in her eyes and mouth, down her shirt, sticking to her "G" tube. We changed pillow cases countless times during those few days. Meg does find comfort in the flannel pillow case she received from the IV team at the DMC and from St. John's. She gets colder more easily and seems to have a hard time maintaining a comfortable body temperature.
Meaghan has also been struggling over the past couple of days tolerating a high rate of hourly feeds. She vomited a couple of times. We were hoping to bring her home this morning but with her upset tummy, we decided to limit the excitement. We've reduced the rate of volume and run it continuously instead. It's a delicate dance, but we'll get there. I think the lower rate of feed allowed Meg to enjoy about 10 spoonfuls of a chocolate malt this evening. A huge accomplishment for her! Meg's even managed to gain a little bit of weight over the past week!
And now we prepare to face the New Year...