Thank you for taking time to follow Meaghan's journey of healing as she battles Medulloblastoma, a form of brain cancer.

Meaghan, our five year old daughter, was diagnosed early November 2009 after an MRI revealed she had a 4 cm solid tumor in her cerebellum. The tumor resection, while successful, resulted in serious complications.

Cancer is a family affair and here I try to chronicle not only Meg's journey, but our whole family's as well.

Wednesday, December 2, 2009

Come On!

Alright, enough already... I've heard repeatedly that there will be good days and bad days, one day at a time, etc. I'm just looking to string together a couple of uneventful days! No luck.

During one of Meaghan's therapy sessions it appears that she had two very brief focal seizures. Neurology has been consulted and an EEG is scheduled for tomorrow morning. I can't even begin to wrap my head around this potential wrinkle. Strike one!

In addition to this development, Meg has lost 1.5 Kg in one week, so removing the feeding tube is a no-go. While her weight loss is being attributed to her level of exertion during therapy, they do not want her weight loss to get out of control. Strike two!

So while we're at it, we were advised of Meaghan's double randomization results: She will receive the standard doses of radiation during both phases of her treatment (cranio spinal axis and posterior fossa). We were really praying that she receive a reduced dose of radiation at some phase of her radiation. Strike three!!

All this information came neatly bundled within a 15 minute time span.

Yeah, I lost it today.

Here's a little piece of advice for all you med students, residents and attendings: Read a patient's flippin' chart before you come in to assess! Stop and think that neither the patient nor the family wants or needs to repeat every little detail of the entire saga. Come informed!

Here's another little morsel of advice for parents: if a room full of white coats and scrubs staring at and talking about your child upsets her, kick 'em out. Have them assess, then go to another room for consult. And don't apologize for expecting them to come prepared or asking them to be sensitive to their patient's emotional tolerance for being spoken about in third person.

And while I'm at it... Lord, enough already! I'm not looking for miracles (while it wouldn't hurt). I'm just looking to string together several uneventful days for Meg. That's it. I just wanted her to have some peace before radiation begins next week.


  1. I'm sorry you are going thru this... I do not know how to help.

    I will however let you know you're in our family prayers.

    May G-d bless you.

  2. Well said. Sounds like a pretty cruddy day. I totally get wanting to be able to string a few good one's together!!! I'm praying for that - and the miracles too!!!
    "Becasue of the Lord's great love we are not consumed, for His compassions never fail. They are new every morning; great is Your faithfulness. I say to myself, "The Lord is my portion; therefore I will wait for Him." Lamentations 3:22-24.


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