Meaghan has stopped eating. It could be from a multitude of things like esophageal swelling from the radiation or nausea - who knows. If only she could tell us!
Of course, it causes me great concern. Thankfully, her tube feeds continue, but we may need to increase the duration and volume to compensate for the lack of oral food intake. If we are required to do this, it will make physical therapy more cumbersome.
Days like these are the days when I start to question and blame myself. Rationally, I know we had no other choices, but emotionally, it's my name on the consent forms. I allowed this to be done to her. I told her she'd feel all better after the doctor took the boo-boo out of her head...
You did (and do) what you need to do. And you're doing an amazing job at it. She might not completely understand the why and the how, but your daughter loves and trusts you. Even when what has to be done means that she might not like you, or like it, or want to keep going.
ReplyDeleteHang in there!
My friend Nicole and I are praying and praying for you little one, even her service dog Caper knows who we are talking about when we say Meg or your full name. Keep fightinging this thing, kick its rear end. No one should have to go through this, especially a child. Sending our love, good wishes, prayers and sloppy kisses and wiggles fro Caper the Service Dog, keep fighting kiddo.
ReplyDeletePS Meg, if you click on Capers name you will get his profile, and a link to his blog, he dictates, I type :) You might get some good laughts or even a smile out of his pictures and stories. He is a friend of the doggy Aussie who may have been to see you. Keep fighting Meg. You are a very brave young lady to fight this! You inspire me (Brandy) to not whine or complain about little things or little pains in life. Lots of love to you.
ReplyDeleteHey You!
ReplyDeleteWe talked about this!!! Praying hard for you to see the strong, amazing mother you are! Love you!
Karla