Thank you for taking time to follow Meaghan's journey of healing as she battles Medulloblastoma, a form of brain cancer.

Meaghan, our five year old daughter, was diagnosed early November 2009 after an MRI revealed she had a 4 cm solid tumor in her cerebellum. The tumor resection, while successful, resulted in serious complications.

Cancer is a family affair and here I try to chronicle not only Meg's journey, but our whole family's as well.

Sunday, November 22, 2009

Hitting a Wall

I'm completely frustrated! She's not sleeping at all - one and two hour stretches punctuated by equal times of crying and screaming does not equal recuperative sleep! After benedryl, Trazadone, and one dose of Adavan not cutting it we gave her another dose of Adavan. Up side is she slept for six hours. Down side is she is back to not opening her eyes. So, for example, she is awake with her eyes closed and whining non-stop.

This SUCKS!

We are looking into some other options for her to help her relax and sleep. I've had candid conversations with the staff. Most pointedly, she has not really slept in two weeks. How on earth is she expected to handle radiation and chemo if she is not resting?

So many of you have expressed concern about how we are coping. I cannot speak for my husband, but I'm hitting a wall. I know the tumor had to come out, but nothing, absolutely nothing has prepared me for this type of recovery. I don't even know how to describe the frustration and anger I am feeling. Lo! to the person who pokes this very angry mama bear!
Posted by Praying For Meaghan at 9:55 AM

2 comments:

  1. UnknownNovember 22, 2009 at 3:17 PM

    Amy,

    If there is anything at all that you need, please let me know. We continue to pray for Meaghan, you, and the entire family everyday.

    Please call me if you need me.

    Denise K.

    ReplyDelete
  2. CrystalNovember 23, 2009 at 11:44 AM

    I'm sorry you're going thru this.

    I wish there were something I could do to ease the pain for your daugher and your family...

    All I can do is pray, and so that is what I am doing. If you need anything please do not hesitate to call.

    May G-d be with your family and the hospital staff during these trying times.

    ReplyDelete

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