Thank you for taking time to follow Meaghan's journey of healing as she battles Medulloblastoma, a form of brain cancer.

Meaghan, our five year old daughter, was diagnosed early November 2009 after an MRI revealed she had a 4 cm solid tumor in her cerebellum. The tumor resection, while successful, resulted in serious complications.

Cancer is a family affair and here I try to chronicle not only Meg's journey, but our whole family's as well.

Tuesday, November 17, 2009

Parade of White Coats

What a draining 24 hours! Meaghan was very fussy last night. I don't know if it was a headache, gassy tummy, surgery related irritability... We just don't know. After a long fitful night, Tuesday was a non-stop parade of lab coats: Meg's primary pediatrician, physical therapy, occupational therapy, PICU Attending doc and residents, Oncologist, Walk With Me doctor and nurse (patient and family support services) and a new surgeon.

Meaghan will have another surgery on Wednesday. She will undergo a spinal to determine if there are any cancerous cells in her spinal fluid and she will also have her medi-port installed. Surgery is scheduled for early afternoon. I'm nervous. We'll hopefully have the results by Friday.

Meaghan's progress continues to be painfully slow. She's still not chewing on her own. Unfortunately, we will have to deal with the NG tube again. They will be putting it in during surgery tomorrow. I know she's going to hate it. We need to get out of this nutritional deficit before we can simply resume maintenance. It's so frustrating for her and us. We continue to provide calorically dense and fortified shakes to her through a syringe.

She continues to make progress by increasing her level of alertness, but she is still not talking or smiling. She cannot sit up on her own, or really even hold up her own head. She is so frustrated by all of this! I would love for her to sit up and just tell us off - anything!

I am proud of my big kids. They are trying to hard to handle all of this. Madison worked with Pastor to design bracelets to sell to help defray medical bills. Maddy is so desperate to help with Meg's care. I'm glad she has something to focus on on. We all need a purposeful distraction.

We'd like to, again, thank you all for your prayerful support of Meaghan's healing. May God provide healing to the areas of need in your life.


  1. What a day!!! I can completely relate to Maddy's desparation to help. I'm glad she's found an outlet and I love the idea. I'm praying for all of you. Love to you all. xo

  2. Wow! That's alot to deal with! Wow, your Madison sounds like an awesome daughter to have. She took something bad, and is trying to help in a way that is creative and being so young that is something you don't see in children these days! We're still praying for your family. May G-d grant you all you and your familly need and more.


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