Meaghan will have another surgery on Wednesday. She will undergo a spinal to determine if there are any cancerous cells in her spinal fluid and she will also have her medi-port installed. Surgery is scheduled for early afternoon. I'm nervous. We'll hopefully have the results by Friday.
Meaghan's progress continues to be painfully slow. She's still not chewing on her own. Unfortunately, we will have to deal with the NG tube again. They will be putting it in during surgery tomorrow. I know she's going to hate it. We need to get out of this nutritional deficit before we can simply resume maintenance. It's so frustrating for her and us. We continue to provide calorically dense and fortified shakes to her through a syringe.
She continues to make progress by increasing her level of alertness, but she is still not talking or smiling. She cannot sit up on her own, or really even hold up her own head. She is so frustrated by all of this! I would love for her to sit up and just tell us off - anything!
I am proud of my big kids. They are trying to hard to handle all of this. Madison worked with Pastor to design bracelets to sell to help defray medical bills. Maddy is so desperate to help with Meg's care. I'm glad she has something to focus on on. We all need a purposeful distraction.
We'd like to, again, thank you all for your prayerful support of Meaghan's healing. May God provide healing to the areas of need in your life.
What a day!!! I can completely relate to Maddy's desparation to help. I'm glad she's found an outlet and I love the idea. I'm praying for all of you. Love to you all. xo
ReplyDeleteWow! That's alot to deal with! Wow, your Madison sounds like an awesome daughter to have. She took something bad, and is trying to help in a way that is creative and being so young that is something you don't see in children these days! We're still praying for your family. May G-d grant you all you and your familly need and more.
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