The NG tube is in. We'd gone from longer restful periods, back to extreme irritability. This is going to be a long night. I'm angry and helpless, but she needs the nutrition.
As we await the full pathology report, we are trying to focus on the more immediate hurtles: warding off infection, increasing the sodium output in her urine, getting her to eat. We are also trying to focus on some loving things we can do: sponge baths and loving massages. It's always a fine line - not wanting to over stimulate her.
I continue to pray diligently for her health care providers.
Me? I'm starting to grieve for our old life... The tears are coming more readily now. To paraphrase my much too mature daughter: This is jank!