I thought I was prepared. Even though it was an overview, my head is swimming with information: 70% - 80% success rate, risks of radiation: neurological and cognitive impairment; hearing loss; dysfunction of speech pattern, critical to start radiation within 31 days of surgery, a year of treatment, spinal tap need on Wednesday, full MRI needed within three weeks...
We can't even get her to eat enough! We might have to go back to the ng tube. They called in speech therapy, physical therapy, occupational therapy... Our vibrant, willful, stubbornly shy five year old has been reduced to wet noodle. It's like having a newborn again. What must she be going through? What is her future? What will be her quality of life?
Ed is resolute, determined. I thought my daily sacrifices as a mother were taxing. I am not prepared, but who is ever prepared to have a life-threatening illness park itself in the middle of your life?
Ame-
ReplyDeleteI have been catching word through your posts and sending love through the grapevine- I hope you've recieved them. I know it must feel like the beginning of a very long road, but it is also the first steps back to normalcy. You are one of the brightest and strongest people I know, and if anyone can get through this with His grace it is you.
I cannot say enough how much I love you and all the fam. If you need anything- even if it means coming home and taking Maddy out for a bit- I'll be there.
Love, Love, Love!!
-Mare
Amy,
ReplyDeleteYou are in my thoughts and prayers constantly. I know the news today must be overwhelming but it looks like there are a lot of resources to help Meaghan. We love and care about all of you very much. (I am posting under Leah's account so if you see her name it's me.)
Terri
I'm sorry I don't know what to say to help ease the pain or burden you're now facing. I will however let you know you and your family are in our thoughts and prayers...
ReplyDeleteLooks like you've got a whole array of help for Meaghan.
The road ahead of your family will be tough, if you need anything -day or night- our door is always open.
May the Lord's blessings be with you and your family now and always.
Amy -
ReplyDeleteEverything I can think of to say just sounds trite and platitudinal, but they are no less true: Hang in there, take things one day at a time, "normal" and "fine" are relative, and there are a lot people who love and support you and your family.
I am glad you are blogging, not just to keep us all informed, but as a way to process this situation and to hopefully serve as a marker of how far Meaghan will have come a day from now, a week from now, a year (and more) from now.
Hello Moleski family,
ReplyDeleteI am a friend of Karla's and have been getting prayer updates from her and her sister Lisa. I will be following your blog and praying for your entire family. May God's peace comfort you and give your strength for the road ahead!
Rachel
Moleskis, PLease know that you continue to be in my prayers. Don't quit talking to God, even if it is just to tell Him how mad you are at Him.
ReplyDeleteMy sister-in-law has an Elmo blanket that she would like to give to Meaghan. Are you open to that?
Tina
Amy,
ReplyDeleteall of you have been in my constant thoughts and prayers. I wish there was something more I could do or say to make this easier and rid Meaghan of this horrible illness.
Your support system stretches farther than you could imagine! I have a package for you and Ed that a friend gave me. I will try to find a way to get it to you. Your friends love you and care about you and will help the entire Moleski family through this.
Hugs,
Ann
Amy,
ReplyDeleteI know if you need me for anything, you will call....but I could not help giving you this little bit of (hopefully) comfort. I was told prior to Amber starting treatment that it will seem to take forever with the additional test and results to follow. They were right! But I was also told that when the treatments do begin, time will begin to move faster. They were right there again.
I took that information and tried to dwell on it whenever I began to loose my sanity. Focus forward whenever you can and as often as you can. And when you are ready, please let me know....I have resources for you and your family to help during this difficult time.
May God look upon you with His favor and grant you peace.
All my love with big hugs to you and yours,
Michele
Hello Amy,
ReplyDeleteI am completely shocked about what has happened to Meaghan. My heart truly goes out to you, and your entire family. It is hard to know what to say in times like these.
The only words that I was looking for the last time Sarah was ill, is what the doctor's had to offer, and prayers. One thing that I know you and your family need are love and support. Please know that you can truly call me anytime you need help.
I cannot express how much my heart goes out to you Ed and the kids,
All my love and prayers,
Denise