Thank you for taking time to follow Meaghan's journey of healing as she battles Medulloblastoma, a form of brain cancer.

Meaghan, our five year old daughter, was diagnosed early November 2009 after an MRI revealed she had a 4 cm solid tumor in her cerebellum. The tumor resection, while successful, resulted in serious complications.

Cancer is a family affair and here I try to chronicle not only Meg's journey, but our whole family's as well.

Saturday, November 14, 2009

No Sleep

It's almost 6:00 a.m. We've logged maybe two hours of broken sleep. The ng tube is really aggravating her. There's really nothing else they can give her. I want to scream from exhaustion, from helplessness... If I only knew what I could do to help her feel more comfortable. I laid in bed with her off and on. That would help a little, but not for long.

I hate the ng tube. We were at least getting some quiet periods of waking. Now she's so exhausted and irritable. And I don't blame her one bit.

6 comments:

  1. Need coffee today? I'm free all day - call me.
    Karla

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  2. Oh Amy. I am sorry to hear this. If you need me to bring/do anything for you please let me know. I am free whenever you call. It was nice seeing you and Ed last night.

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  3. Amy, I am so sorry. Hopefully the nutrition will give her the strength she needs to eat on her own. Let yourself cry, it is ok to be angry and frustrated.....I am always here - for anything, anytime.

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  4. I am sure she loves having you hold her!

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  5. Meaghan's smiles were not always there when she was a little one. We use to talk about her being so serious. Her smiles she has shown this year have been sunshine. Jesus is right with all of you. It's alright to be confused, angry, but in the end the glory of God will be shown. Sometimes though, it is after the storm that you see it. My husband and my prayers are with you, we have a grand nephew going through the same thing.

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  6. Ed and amy My thoughts and prayers are with you. It is my prayer that God gives all of of your family the strength and courage you need each and every day. I know there are many offers out there so lets add one more Ed what do you need done around the house.no painting Please.My the peace and healing power of the holy spirit be with megan and your family.

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